Showing posts with label Not-for-profit. Show all posts
Showing posts with label Not-for-profit. Show all posts

Thursday, September 22, 2011

2011 Sydney Running Festival with the Walk On Sydney Wonders

Written by Walk On Sydney Wonder - Simon Hodsden

Beep beep beep,….. Beep beep beep, and it's 3:50 AM on a beautiful Sunday morning and what else would we be doing except getting up and getting ready to participate in the Sydney Running Festival along with about 35,000 other people!

And so the preparation began with the help of my wonderful carer Hazel who agreed to come at four o'clock in the morning to help get me ready, while Sharon and boys organised themselves.
 The logistics of getting me up, ready and at the start line just by Luna Park in Sydney for 7:30 AM somehow seemed very daunting however, with plans made and watches synchronised we were in the car and leaving the driveway only two minutes behind schedule at 5:22 AM. The plan now was to drive to Sutherland Station and get a train to Central Station where we would change and get another one to Milsons Point and meet up with the rest of the team for the start of the fun run.

As we were leaving home we were greeted with a fantastic and beautiful sunrise indicating that the weather would be very kind to us. The journey to the station was particularly uneventful and as we arrived we did notice many other people parking their cars and dressed to participate in the run, it was quite fun trying to guess which distance they may be competing in. Would it be the marathon, half marathon, 9 km or the 4 km fun run, some people were easier to guess than others I think, although when the colour of the bib indicating their run was visible some even greatly surprised me.

Arriving at Sutherland Station we were very fortunate to get a parking space right by the station and the ramp leading to the platform. There was a train waiting for us and the platform attendant was very happy to "throw me quickly onto the train" although not literally. We had actually caught a train earlier than anticipated and were now ahead of schedule. We had just arrived at Sydenham Station when Sharon's phone alarm went off, this was indicating the time we would normally have got up on a Sunday morning, and here we are almost in the centre of Sydney! This was particularly poignant as it was another step back towards "normal" family life as it was before my accident. And it proves that with a bit of effort and an early start we can do it.

CityRail thankfully did not have any surprises for us and we arrived at Milsons Point about 15 minutes early and were in fact the first of our team there. It was incredible the amount of people milling around. There were some very serious runners getting ready for the marathon and a lot of families many with strollers (push chairs, for my English readers) and the overriding sensation that you felt was one of a really happy occasion where everybody was out to enjoy themselves.

The team was now assembling and team shirts were delivered and being worn this meant somebody had to carry all the gear that was now not required. Hmmmmm I wonder who will end up being loaded down (no clues but see if you can guess, a photographic answer will be provided later). The team consisted of us Hodsden's, Chuckie another guy in a chair his wife Mel, our physios Alana, Claudia, Camila and the organising secretary Bec. We were also joined by a research student from the University of Sydney with her family who had just flown in from Malaysia the day before.

The Walk On Sydney Wonders Team - All revved up and 4K to go!

At 7:55 AM we were under starters orders. And We're Off.

The number bibs that we are wearing are really quite clever as they contain a timing thingy that activates something as we go over the start and will stop something at the finish. I didn't want to get too technical (mostly because I don't understand how it works).

The start was a relatively slow affair as everybody had to run through the start line to activate their time thingy, however after that people started to walk, jog and run and for me my 4 km chinathon was about to begin. It is quite surprising but it is actually quite a climb from Luna Park up and onto the Bridge. The beauty about this running Festival is the fact that they close the Bridge to all traffic to allow the event to cross it, something that happens very rarely and it is fantastic opportunity to cross this icon on foot (so to speak).


David showing a good turn of speed with Sharon and I closing up
quickly at the beginning of the climb onto the Bridge.

As we progressed further onto the Bridge the views of Sydney just become awesome. Although there were a lot of people taking part in the run there were sections where the crowds were very thin and during these quiet periods I really took the opportunity to Hoon about and put my chin down and get some speed going. This was great fun as long as I avoid the cracks, small potholes and other variations in the road surface that can make chin driving of a wheelchair a very painful experience.

Have you managed to guess who will be carrying all of the excess baggage?

No? ....all will be revealed in the photograph below.



Yes it was me and I think the balloons are there to counteract the extra weight of the bags! This picture is quite incredible as it almost looks like we are the only people on the Bridge. Although it was very tempting to really speed as fast as possible across the Bridge it was also really great just to savour the atmosphere of the day and the occasion.

Sharon discusses race tactics with Claudia and Camila.

As we approached the end of the Bridge were greeted with a band playing and this added to the carnival atmosphere. It was about this point where my neck began to ache although my chin was still feeling great. The route of the run then took us across the Cahill Expressway and you can get fantastic views of Circular Quay, The Opera House and the Bridge, something that is very difficult to appreciate normally when you are in a car. As we exited the Cahill Expressway there was about 1 km left to go and most of these would now be downhill along Macquarie Street and down to the Opera House where the finish line was.




Going downhill would now be the opportunity for us all too actually get some speed up and the photographs above prove that it was a run. We crossed the finish line with the timing of 48 minutes 40 seconds, I suppose this sets the standard for next year. We must have done pretty well because we all got medals.





After finishing the run and with everybody feeling pretty good all the participants had to exit through the Botanical Gardens where there was a "recovery village". This was packed with runners getting drinks, food and sponsors tents etc and was a real reminder of the organisation that goes into an event such as this.

Getting out of the recovery village and down to the station at Circular Quay took nearly as long as the fun run itself due to the number of people trying to exit at once.

It was a fantastic day and I feel a really great achievement and as the writing on Chuckie's wife's T-shirt said on the back "it does not matter how slowly you go as long as you do not stop" -- Confucius.

I am looking forward to my next Chinathon.

Simon


Matthew 19:26 -- With God all things are possible

Sunday, April 10, 2011

SpineCare Conference 2011

Walk On at SpineCare Conference 10-11th March, Doltone House, Sydney

By Alana Tickle, Walk On Therapist B.App.Sc (ExSpSc) ESSAM AEP

Kierre and I were so happy to be invited as Walk On representatives at the SpineCare Conference, held at the beautiful Doltone House, Jones Bay Wharf on Sydney’s harbour. What a fantastic location to have spent 2 days at!

There was plenty to be excited about at this conference. We had the opportunity to listen to some amazing international keynote speakers including Professor Lawrence Vogel, Associate Professor MJ Mulcahey, Professor Randel Betz and Associate Professor Bonita Sawatzky, all of whom are dealing with paediatric spinal cord patient’s day in and out and are leading the way in current research and treatment options in this field.


Day 1:
The opening session at the conference was an introduction and overview of our main focus for the next two days – innovation and practice in childhood spinal conditions.

I found the second session of the day particularly informative as the panel on stage discussed scoliosis and bone health in children with a spinal cord injury. Bone density is an important consideration at Walk On, so the discussion between traditional methods of testing bone density to a newer method utilising a specialised x-ray, provoked some thought amongst many audience members including Kierre and I.

After a delicious lunch was the Hypotheticals session. It was a really great way to break the day up. It involved some of the leading Doctors and Professors in spinal cord injury research (including Australia’s very own Prof. Mary Galea) role playing in hypothetical situations. It was quite humorous to watch them role play scenarios such as how parents react to different issues that may confront children with SCI. After each skit had played out, a panel discussed how they would personally handle each of the scenarios.

The final session of the day was about the advances in science and technology. I was particularly interested in the neuroplasticity of the spinal cord (presented by Prof. Mary Galea) and current stem cell research that is currently being undertaken. Whilst it was all very technical, it was really interesting! It reminds me of just how complicated the human nervous system is!!

Now day one of the conference was over, we had the opportunity to let our hair down a little and attend a social cocktail party that most of the conference delegates attended. The food was great and so were the conversations… the magnificent view to the Harbour Bridge didn’t hurt either! It was great to see and have a few laughs with our friends at Restorative Therapies - T.Ann who had an exhibition stand at the conference for their FES cycles.

Day 2:
I woke up in the morning with butterflies in my stomach. I so nervous I couldn’t even stomach my breakfast. Even though I have presented on Walk On before, I was nervous about sitting on stage, looking out at over 150 professors, doctors, allied health professionals, nursing staff and parents of children with a spinal cord injury. It was just a tad intimidating! Kierre on the other hand, looked calm and kept telling me “not to worry” and “we’ll be fine”!

Kierre and I sat on stage next to Associate Professor Andrea Behrman and Dr Dena Howland. They presented on activity-based locomotor training and emphasised that high repetitions are the key to activity based therapy approaches when doing activity below the level of injury in children with neurological conditions.

The time came for Kierre and I to get up and speak and my heart started racing a million beats per minute. Despite being so nervous, it was a wonderful and memorable experience. It was so great to share with the audience about what we do and the passion we have for our jobs here at Walk On. I started our presentation with an overview of what Walk On is about and who we are as therapists. I also included some information about our clients such as their level of injury, age, and whether their injury was traumatic or non-traumatic. Kierre then took the microphone and talked about the core of what we do at Walk On – strength training including core stability, balance, posture, coordination gait training and an overview of the equipment we utilise. She also discussed using active assisted movement and visualisation and developmental movement patterns as some of the keys to our program to help stimulate the nervous system. Our session came to a close with question time and I was relieved that all of the questions directed to Kierre and I about Walk On were confidently answered.

Following our presentation, many people from the audience approached us telling us how interesting the program was. The highlight for me however, was being personally congratulated by two of the international keynote speakers; Professor Lawrence Vogel (Assistant Chief of Staff Shriners Hospitals for Children, Chief of Paediatrics, Professor of Paediatrics, Rush Medical College & Medical Director of SCI Program Shriners Hospitals for Children, United States) and Professor Randal Betz (Professor of Orthopaedic Surgery, Chief of Staff at Shriners Hospitals for Children & Medical Director of Shriners' Spinal Cord Injury Unit, United States) on our presentation. Overall the feedback was very positive!

The rest of the day is a bit of a blur really. It went so quickly, as the adrenaline was still pumping and I was on a high from our presentation.

We had an opportunity after our session and during the day to talk to people interested in the Walk On program and hand out some fact sheets and flyers. It felt really great to be able to get the message out there about our wonderful program that uses intense dynamic activity-based exercise therapy. So many of our clients are reporting functional benefits and hopefully we can continue to offer the program to more people in the spinal cord injured community, including paediatrics, now that they know the program exists!

Kierre and Alana with Assoc. Prof. Andrea Behrman, Assoc. Prof. Dena Howland University of Florida

Wednesday, November 18, 2009

On the spot with Kate Greener

Star intern Rachel steals five minutes with one of the dedicated Walk On recovery specialists, Kate Greener, to find out why she thinks Walk On is the bee’s knees.

RC: So Kate, how did you become involved in Walk On?

KG: Luckily for me,
Walk On found me. I was working as a gym supervisor at the Sporting Wheelies and Disabled Association. I always wanted to be involved in spinal rehabilitation and was frustrated that there was very little available outside of the hospital system. Then in rolled David Prast, who was looking for a venue to bring Walk On to Australia, and the rest is history. I volunteered for Walk On for just over a year and was the third trainer to be sent to Project Walk. I have now been a part of the Walk On team officially for just over a year.

RC: What are some of the big and small achievements you have seen since the pilot began?

KG: The biggest achievement I have seen has been the increase in clients’ independence. When some of the guys started the program, they were driven to the gym, pushed up the ramp by their partners and hoisted on and off equipment. Basically, they were dependent on other people to do a lot of the things we do in our day-to-day lives. Many of them were frustrated, self-conscious, angry and in some cases desperate for something, anything more. It’s then amazing that 6-12 months down the track, some of these clients are driving, transferring, travelling, working and are independent individuals.

RC: Do you feel these achievements have improved clients’ quality of life?

KG: Definitely. With increased strength and fitness comes less health problems such as skin tears, blood pressure issues, urinary tract infections and depression to name a few. In general our clients are happier, healthier, more independent and driven to make the most of life which is very rewarding as a trainer. Nathan Handley walking over the finish line at the
Bridge to Brisbane was a great moment this year, Joe taking his first steps on his crutches and Jayme being able to transfer into a car for the first time since his accident; have all been big moments for me this year.

RC: What is the US Project Walk like in comparison to Walk On?

KG:
Project Walk is a truly unique experience. There are people there from all over the world, all under one roof, for the same reason. And it is so big - we would love to have that much space one day! They have many clients and trainers so I learnt lots. Everyone was willing to help you and made us feel welcome. Our facility is smaller but the atmosphere of our gym is something you cannot replicate. Unlike Project Walk, we have people from all disability groups training under one roof. There is a great camaraderie and sense of fun at the gym. Both places offer something different whilst executing a high level of training.

RC: So to wrap it all up, tell me why Walk On is so exciting?

KG: I love that this program gives people a choice to maximise their functional recovery and regain functional independence, confidence and an improved quality of life. This is the first program of its kind in Australia and I'm excited to be a part of it.

Thanks for your time Kate - keep up the good work!

Rachel

Rachel Caton
Public Relations Intern
Spinal Cord Injuries Australia

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Tuesday, November 17, 2009

A National Launch to Remember

Last Monday 9 November, during Spinal Cord Injuries Awareness Week, we were fortunate to bring members of the Spinal Cord Injury (SCI) community, their family and friends, supporters and the media together to celebrate the national launch of Walk On at Sydney Opera House.

The launch of this exercise recovery program was a watershed moment for the community in so many ways, to people such as:

  • The founders of Project Walk in the USA who have worked hand-in-hand with us, to deliver a quality Australian version of the original program
  • Our dedicated recovery specialists, who were trained in the USA and who are thrilled by the accomplishments of each of their clients
  • Walk On clients from the Brisbane pilot program and their families, whose hard work and determination has been repaid with the ability to drive a car, feed their kids and other independent everyday activities we take for granted
  • Our potential new clients, who heard about Walk On from SCIA, on the SCI grapevine, in the media or social media and are ready to get involved
  • All the SCIA team, so passionate about expanding the program from Brisbane to Sydney and other cities – making the prospect of regaining functional recovery post-SCI a reality

The Walk On launch was attended by over 100 people, all enjoying the jazz tunes and sparkling Sydney Harbour offered up to us on that summery morning. Despite the lovely surrounds, we were there with purpose – to raise awareness about a groundbreaking spinal cord injury recovery program, how using intensive exercise can stimulate and retrain the damaged nervous system and maximise functional recovery after serious injury.

As I said at the launch, “Walk On isn’t a cure for SCI, we know that, and more importantly our clients know that. Walk On is part of the evolution of recovery given to us by improvements in neurosurgical, acute and rehabilitation care.

“Walk On builds upon these advances, helping people achieve their maximum potential for recovery, to be the very best they can be, to be ready to take full advantage of the advances of tomorrow.

“The beauty of the Walk On program is that it is completely built on promoting independence. And it completely depends on the guts, determination and motivation of participants.”

We were so pleased to have
Bill Shorten MP, Parliamentary Secretary for Disabilities and Children’s Services speak and share some heartfelt sentiments. He reminded us that a spinal cord injury can befall any of us and can happen in the blink of an eye.

Bill Shorten spoke of Walk On as one of the hardest and most demanding programs around, but one getting results in people’s rehabilitation post-Spinal Cord Injury. He also touched upon the inequality that stems from compensation being available to some people who experience a SCI and not others.

Shorten said, "It's fantastic we are here launching [Walk On] during Spinal Cord Injuries Awareness Week. [However,] I do not accept that compensation and support in this country should be a lottery. We talk a lot in this country about a fair go. All too often, while some have the support in jurisdictions such as NSW, in other circumstances people are left relying on the support of their families and charities."

While we talk about the 300 people affected by spinal cord injuries every year, and 10,000 Australians nationwide, the number of those impacted is, at the very least, tenfold.

So, I would like to reach out to thank the many friends, family members, colleagues, donors, carers and workers who are helping us to, as
Brisbane participant Rhys says, “build momentum and get these things up and running, keep them running. If we can do that, we can take Spinal Cord Injury away from where it’s been for so many years.”

To refer someone to
Walk On, please email walkon@scia.org.au. To find out more or make a much-needed donation to support the program, visit our website www.scia.org.au.

Here’s to taking the next steps with Walk On.

Stay strong,

Peter

Peter Perry
Chief Executive Officer
Spinal Cord Injuries Australia

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Ps. Take a moment to enter our photo competition celebrating the national launch of Walk On during Spinal Cord Injuries Awareness Week! Simply upload a photo showing “What makes you happy” to our Flickr page for the chance to win a digital camera. Entries close Tuesday 24 November.
ENTER HERE:
http://www.flickr.com/groups/walkon.

Sunday, November 1, 2009

Walking into Walk On

My name is Rachel and I’m a 3rd year PR student. I joined Spinal Cord Injuries Australia in July 2009 as an intern assisting with public relations activities for Walk On. Being a Brissie girl, I got to spend a couple of months working out of the Sporting Wheelies and Disabled Association Gym in Bowen Hills, which is where the Brisbane Walk On pilot program has been operating.

I came to
Walk On with little knowledge of SCIA, Walk On or spinal cord injuries, but what I have learnt in the four months I have spent with the organisation has been enough to change my outlook forever.

There are the obvious things I have learnt; complete vs incomplete injuries, injury classifications, the hospital process and types of accidents that cause spinal cord injuries; however, the most amazing thing I have learnt is that this exercise recovery program is making the most incredible difference to the lives of participants.

Working so close to the gym, I have met, watched and assisted clients in their training and heard a lot of the stories of the accidents that brought them to
Walk On, but the best bit is hearing where they are going with their new abilities.

Joe Salu, the cheeky and lovable larrikin, has been able to return to work since completing his training to be a tower crane operator; Rhys Tappenden has become a dad for the first time, feeling confident in his ability to be a father to his beautiful little girl; and Nathan Handley, the daredevil-dude, has actually got back on his motorcycle, much to the horror of his poor mum.

What I’ve taken from all these incredible people and
Walk On, is that it doesn’t matter what challenges people face, what others say, or what ‘the chances are’; because where there’s a will, there’s definitely a way.

Thanks for listening,

Rachel

Rachel Caton
Public Relations Intern
Spinal Cord Injuries Australia


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Tuesday, October 27, 2009

A first blog and an Australian first

Firstly, introductions: My name is Peter Perry and I’m CEO of Spinal Cord Injuries Australia, known as SCIA. We’re jumping into the social media sandpit and starting a blog that chronicles stories from some of the 12,000 Australians affected by Spinal Cord Injury, their families and all those who help.

SCIA has been around for 40 years, and we’re driven to help people with a spinal cord injury to become independent in the community. We are a community-based organisation, we support people and assist them to live a better quality of life. Some of the support we provide includes information programs, accommodation services, employment services and peer support services, all about providing people with support and assistance when they need it. You can find out more at http://www.scia.org.au/.

SCIA doesn’t sit around waiting for others. We like to think of ourselves as trendsetters and Walk On, the new exercise recovery program we launch nationally on November 9, is a good example. We knew the program was operating in the USA – as Project Walk – and we saw it would be of benefit to our clients and members. Our members asked, so we went to the States to find out about bringing it Down Under.

SCIA is a pragmatic organisation. We’re not an academic research unit who researches something for decades, although there is a place for that, but others are better qualified. We roll up our sleeves, get in and get started.

And so, Project Walk (USA) and Walk On (AUS) explore new rehabilitation and recovery strategies for people with a spinal cord injury in a safe and controlled environment. We see the benefits from Project Walk clients in the USA and are seeing the same results in clients participating in our Brisbane pilot program. The next steps are our national launch at the Sydney Opera House, beginning Walk On in Sydney, and rolling the program out to other states and territories.

We’re excited about Walk On because it’s changing people’s lives post-SCI. It’s not all about walking again – not too many end up walking – it’s about improving functional recovery. If you have been paralysed and can drive your car again, clean your teeth, lift up your kids to give them a hug: all these things are huge achievements.

A word about some people in the community who appear suspicious of the program. While Walk On has not yet been 'scientifically proven' with years of research, we see results and real-life benefits every day. We are offering this opportunity to anyone in Australia with a Spinal Cord Injury (and there’s about 300 new cases every year) rather than people having to travel to the USA for the program or waiting years for it to happen.

How many people are in some way affected by a spinal injury? There are 12,000 Aussies affected by the injury itself, but so many more directly and indirectly than that – and we want to reach out to everyone to spread the word about Walk On.

Spinal Cord Injuries Australia is keen to have conversations in the online community because online forums give us all a voice and a chance to better understand each other’s unique perspective.

Stay strong,

Peter Perry
Chief Executive Officer
Spinal Cord Injuries Australia

Follow us on
Twitter - we're @walk__on
Join the
SCIA Cause on Facebook
Become a Walk On Facebook Fan
Subscribe to our blog: Walk on from Spinal Injury