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Sunday, August 22, 2010
Winning Wheelers Ambassador Angel's first Video Blog
www.gofundraise.com.au/angelwalkson
Monday, July 5, 2010
A Project Walk experience comes to an end
One such family travelled to Project Walk to help their daughter Rhiannon, hoping to acheive her goal of walking again. Outside of the positive results she acheived through hard work, determination and the skill of her trainers, they discovered friendship and inspiration in a place they never dreamt they would. The following blog is from Rhiannon's mother, Sharyn. It reflects on their time at Project Walk as their time draws to an end. We are so very happy that they had a positive and uplifting experience at Project Walk and hope when they arrive back in Australia and join Walk On that, that experience continues.
By Sharyn Bradford
As I reflect from a mother's point of view and a friend too many with Spinal Cord Injury, the past 8 weeks here at Project Walk and in this little place called Carlsbad, there are so many things to share with you. So I will start from our arrival. I remember feeling so sad having to leave my husband, friends and my work but I knew it was what had to do for my daughter, if we wanted the best possible outcome which was for her to "Walk Again".
The plane trip was daunting for me cause the last plane ride before this was my plane trip back from Bali after the accident, I cannot even begin to tell you have anxious I was, but we made it safe and sound and thanks to the great staff on our V Australia flight we were upgraded to 1st Class!
We arrived at San Diego airport at around 10.30pm and waited for our shuttle to take us to our hotel, well what a ride that was! From San Diego Airport to Carlsbad is about 45min's, I am sure the guy that picked us up was a racing car driver, the freeway speed limit is 65miles per hour, this guy was driving at about 85-90mph and Rhiannon was sitting in her wheelchair bouncing around like a rag doll. I had to ask the driver to take it a little easier due to Rhiannon's injury. When we arrived at our hotel, he told me that if I thought he drove fast in the shuttle bus; I should see him drive in his own car....no thank you, Rhiannon and I just laughed we were exhausted, checked into our room to discover the room did not have a roll-in shower as requested but due to being exhausted we would manage. We only had one day to recover from our Jet Lag before Rhiannon was to commence "Project Walk" so sleeping the next day is all we did.
Carlsbad is like a little beach Village, very wheelchair accessible as there are alot of elderly retired people and from what I see is a very popular holiday destination. We started our first day at Project Walk on 11th May nice and early 8.00am, that was hard, Rhiannon and I had to be up around 5.30am to get there in time as we had no idea where it was, we arranged a Taxi to pick us up at 7.30am. I had met the Taxi driver the day before as I went looking for Aussie Power Adaptors whilst Rhiannon was sleeping, he was great taking me everywhere to find the adaptors, but we couldn't get them anywhere. Anyway this Taxi Driver was driving one of his fleet which was a pick up truck, I explained to him that when he picked Rhiannon and I up the next morning he would have to bring his sedan as Rhiannon wouldn't be able to step up into this Gigantic truck, he replied; "No problems". Well the Taxi driver arrived at 7.30am in his pick up truck! He said don't worry Sharyn I will just lift her in, I thought Omg this is going to be great! He did get her in with my help. The trip from our hotel to Project Walk was only 15mins, when we arrived the taxi driver dropped Rhiannon trying to get her out of the truck into her wheelchair, luckly she didn't get hurt, not a great start to the day, I felt sick knowing she had to commence on this note, but she was a trooper and just said; Mum I'm o.k.! Needless to say that taxi driver didn't get another opportunity to transport us anywhere! We walked in to Project Walk and met Rhiannon's trainers, Kimber, Kimmy & David, they were all excited about meeting Rhiannon and as Kimber did her evaluation, I knew we had made the right decision to be here. I honestly want to bring these people home, they are warm, caring and determined, highly motivated and what special people to deal with the emotions of the clients that come in every day with this injury. This was a very emotional time for me, they were so positive and I know they set their own little personal goals for Rhiannon and they believe she will "Walk again" as we have done from the day the Medical Guru's told us "NO"!
The first day of Project Walk was fantastic, the trainers worked out what Rhiannon could and couldn't do, we met Gigi, Tricia & Kathy from Administration and even these girls are beautiful, given the fact I had come over on my own, had no idea where I was going to anywhere, these girls made me feel comfortable and were full of information to make our transition to America more pleasant!
We had a few ups and downs in the first weeks, we had to move from our hotel, due to me dropping Rhiannon trying to get her out of the makeshift bath/shower we had in our room, Rhiannon got very ill with a stomach bug that was going around, then a UTI and I was running all over town getting her medications for everything as she did not want to see a doctor, mind you I was getting Taxi's everywhere and it was costing a fortune. After the first week I decided I had brave it and hire a car, I was petrified, they drive like maniacs over here and very fast, but I couldn't cope knowing that if I had to take Rhiannon to the Emergency Room in a hurry, the taxi wouldn't get here fast enough. We had a great relationship with our new Taxi Driver Sean, he was so caring and a great guy, he would transfer Rhiannon into the cab, he knew how to disasemble & asemble Rhiannons chair, we met his beautiful girlfriend Miranda as we dropped her off at work on the way to Project Walk, it really was great having Sean around I was sad when I hired the car, cause he was like our Body Guard and was full of useful info on the area.
Day 1. with the hire car was frightening, I really had to concentrate driving on the opposite side of the road, I had no idea of the road rules, I just followed the traffic and drove really fast, I felt like I was Jamie or Lowndsy on a race track, I know our friends in Karting and Racing would be proud of me! One of our friends at Project Walk had said to me; the best way to get around the driving is to always think "Left is Wide and Right is Tight". That is permanently embedded in my brain...(Thanks Maddy Bayer). Rhiannon and I have had a few laughs with my driving, as yes I have forgotten sometimes and driven on the wrong side of the road, the first time we got petrol was hilarious! I drove in on the wrong side and the petrol station was packed and everyone just looked at me. Well I got out at the pump and said: "I am Australian gimme a break"! It was even funnier when I was trying to put petrol in the car and was cursing that the bowser wasn't working, when little did I know, in America you pay for your petrol first before you put it in! What a great idea, stops people from driving away without paying. The other little thing I am having trouble with is; is getting into the driver seat, once or maybe even a few times, I have been at the supermarket and have gone to get in the passengers seat to drive, I look around to see if anyone has seen me and then I have a quiet chuckle to myself and quickly go to the other side!
Anyway the weeks have gone quickly and Rhiannon has trained so hard as you can see by her video's, the strength she has gained is just amazing, this place Project Walk is not just a place to come and gain strength and recovery, it is also a place for support not just for the client but for the wonderful and inspirational carers that are looking after their loved ones, I have been privilaged to meet the best people: Kate & Barney who come from Sawtell near Coffs Harbour, Barney who was a passenger in a terrible car accident over 10 years ago and left him in a wheelchair, this is his second visit to Project Walk and he has gained so much from PW and cannot rate the place high enough, his beautiful girlfriend Kate (who will be famous one day, she is an inspirational singer/songwriter) and has written a song about belief, determination & the power to do anything if your mind is right, being right by his side, she is a young girl, that has been with Barney for 3 years and has been nothing but Barney's everything from the word go! Barney lets nothing stop him, he has never let his injury deter him from doing anything. He has travelled the world, surfed and is an inspiration to everyone that meets him. You just have to be his friend on facebook to see how much he has achieved and I think he is da bomb!!! We have met a beautiful family from Texas, Sherry & Jay (Mum & dad), Kendell, her boyfriend Justin, Lindsay & Meagan (Kendell sisters) Kendell was again a passenger in an horrific car accident, her family has been taking it in turn to care for Kendell, they are here for 12 months and wow what a family, you guys have touched my heart as the support you give each other is amazing. They have rallied together and are doing fundraisers all over the place to keep Kendell here for training and treatment. You have shown me what a real family is all about, my hat goes off to you, I love you people. We all went to the Del Mar fair the other night, with one of the trainers from PW Tyler and his girlfriend Nicole, Kendell wanted to go on one of the scariest rides at the fair, its called "Speed" It is as tall as the Giant Drop is QLD, but you sit in it and it goes up really high and the spins you upside down and around and around, I wouldn't even attempt it and I love those scarey rides, but Kendell said; If Barney can do it, so can I!. Now thats what I'm talkin about! This is what you gain from being at PW, not only do you make new friends, you get inspiration, motivation and you learn that you should not let that wheelchair stop you from living life!
I want to talk more about the trainers here at Project Walk. Kimber, Kimmy, David, Margarite, Tyler, Gen, Meika, Jason x 3, Brie, Jillian, Kathy, Sachi, Josh and then there are the trainer aids very important people, Sara, Emily, Connor, Stacey, Kayla, Joel if I have forgotten anyone I apologise, Well these people are the people that change Spinal Cord Injured peoples lives forever, their dedication, compassion, motivation is unbelievable, they work so hard and not only that, they have always got your back, for the first couple of weeks of our stay I was nearly beside myself looking at 4 walls in a hotel room, that soon changed, these people invite you into their lives, you become their friends, we are never stuck now for something to do. Since we have been here, we have been to Kendells surprise 30th, Del Mar Fair, We celebrated my birthday with a bash at the hotel and this weekend we went to a very exciting "Padres" Baseball Game and last night to Brie's for a BBQ all with the Project Walk Crew, the accolades must go to these people, they are sincere and will have a special place in my heart for the rest of my life.
People come from all over the world to Project Walk, it is a real Multi-Cultured Centre, this is where you see our crazy world all bond together. We have met people from India, Brazi, Hungry and those mad Canadians, Laura & Andrew you has also made an impact in our lives, we all share the same heart wrenching stories and we are all striving for the same result, that is to get our loved ones better.
I was having a conversation with Jay, Kendells dad a couple of weeks ago and we said; that if anyone is having a bad day, they should visit Project Walk, you walk in and see all the highly motivated & determined people training and it would most definately change your mood! There are kids as young as 3 years old, yes that is right, 3 years old and there is a gorgeous young man named Patrick who was run over at the age of 14 months old, he is now 15 or 16 and you should see his determination, he pushes himself so hard with the most amazing results.
Think about this for a minute.....As non-injured people we go to the Gym we work out for maybe an hour or two we are exhausted or feel great that we have had such a good workout! Well Project Walk Clients & Trainers work out for anything between 2-5 hours a day being injured and you work really hard, there is no slacking off, the clients here work harder than what I have seen in any Gym in Australia!
1000 Cheers for the trainers & aids at Project Walk, you guys make a real difference in the world.....We love you all!
Wednesday, November 18, 2009
On the spot with Kate Greener
Star intern Rachel steals five minutes with one of the dedicated Walk On recovery specialists, Kate Greener, to find out why she thinks Walk On is the bee’s knees.
RC: So Kate, how did you become involved in Walk On?
KG: Luckily for me, Walk On found me. I was working as a gym supervisor at the Sporting Wheelies and Disabled Association. I always wanted to be involved in spinal rehabilitation and was frustrated that there was very little available outside of the hospital system. Then in rolled David Prast, who was looking for a venue to bring Walk On to Australia, and the rest is history. I volunteered for Walk On for just over a year and was the third trainer to be sent to Project Walk. I have now been a part of the Walk On team officially for just over a year.
RC: What are some of the big and small achievements you have seen since the pilot began?
KG: The biggest achievement I have seen has been the increase in clients’ independence. When some of the guys started the program, they were driven to the gym, pushed up the ramp by their partners and hoisted on and off equipment. Basically, they were dependent on other people to do a lot of the things we do in our day-to-day lives. Many of them were frustrated, self-conscious, angry and in some cases desperate for something, anything more. It’s then amazing that 6-12 months down the track, some of these clients are driving, transferring, travelling, working and are independent individuals.
RC: Do you feel these achievements have improved clients’ quality of life?
KG: Definitely. With increased strength and fitness comes less health problems such as skin tears, blood pressure issues, urinary tract infections and depression to name a few. In general our clients are happier, healthier, more independent and driven to make the most of life which is very rewarding as a trainer. Nathan Handley walking over the finish line at the Bridge to Brisbane was a great moment this year, Joe taking his first steps on his crutches and Jayme being able to transfer into a car for the first time since his accident; have all been big moments for me this year.
RC: What is the US Project Walk like in comparison to Walk On?
KG: Project Walk is a truly unique experience. There are people there from all over the world, all under one roof, for the same reason. And it is so big - we would love to have that much space one day! They have many clients and trainers so I learnt lots. Everyone was willing to help you and made us feel welcome. Our facility is smaller but the atmosphere of our gym is something you cannot replicate. Unlike Project Walk, we have people from all disability groups training under one roof. There is a great camaraderie and sense of fun at the gym. Both places offer something different whilst executing a high level of training.
RC: So to wrap it all up, tell me why Walk On is so exciting?
KG: I love that this program gives people a choice to maximise their functional recovery and regain functional independence, confidence and an improved quality of life. This is the first program of its kind in Australia and I'm excited to be a part of it.
Rachel
Rachel Caton
Public Relations Intern
Spinal Cord Injuries Australia
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Tuesday, November 17, 2009
A National Launch to Remember
Last Monday 9 November, during Spinal Cord Injuries Awareness Week, we were fortunate to bring members of the Spinal Cord Injury (SCI) community, their family and friends, supporters and the media together to celebrate the national launch of Walk On at Sydney Opera House.
The launch of this exercise recovery program was a watershed moment for the community in so many ways, to people such as:
- The founders of Project Walk in the USA who have worked hand-in-hand with us, to deliver a quality Australian version of the original program
- Our dedicated recovery specialists, who were trained in the USA and who are thrilled by the accomplishments of each of their clients
- Walk On clients from the Brisbane pilot program and their families, whose hard work and determination has been repaid with the ability to drive a car, feed their kids and other independent everyday activities we take for granted
- Our potential new clients, who heard about Walk On from SCIA, on the SCI grapevine, in the media or social media and are ready to get involved
- All the SCIA team, so passionate about expanding the program from Brisbane to Sydney and other cities – making the prospect of regaining functional recovery post-SCI a reality
The Walk On launch was attended by over 100 people, all enjoying the jazz tunes and sparkling Sydney Harbour offered up to us on that summery morning. Despite the lovely surrounds, we were there with purpose – to raise awareness about a groundbreaking spinal cord injury recovery program, how using intensive exercise can stimulate and retrain the damaged nervous system and maximise functional recovery after serious injury.
As I said at the launch, “Walk On isn’t a cure for SCI, we know that, and more importantly our clients know that. Walk On is part of the evolution of recovery given to us by improvements in neurosurgical, acute and rehabilitation care.
“Walk On builds upon these advances, helping people achieve their maximum potential for recovery, to be the very best they can be, to be ready to take full advantage of the advances of tomorrow.
“The beauty of the Walk On program is that it is completely built on promoting independence. And it completely depends on the guts, determination and motivation of participants.”
We were so pleased to have Bill Shorten MP, Parliamentary Secretary for Disabilities and Children’s Services speak and share some heartfelt sentiments. He reminded us that a spinal cord injury can befall any of us and can happen in the blink of an eye.
Bill Shorten spoke of Walk On as one of the hardest and most demanding programs around, but one getting results in people’s rehabilitation post-Spinal Cord Injury. He also touched upon the inequality that stems from compensation being available to some people who experience a SCI and not others.
Shorten said, "It's fantastic we are here launching [Walk On] during Spinal Cord Injuries Awareness Week. [However,] I do not accept that compensation and support in this country should be a lottery. We talk a lot in this country about a fair go. All too often, while some have the support in jurisdictions such as NSW, in other circumstances people are left relying on the support of their families and charities."
While we talk about the 300 people affected by spinal cord injuries every year, and 10,000 Australians nationwide, the number of those impacted is, at the very least, tenfold.
So, I would like to reach out to thank the many friends, family members, colleagues, donors, carers and workers who are helping us to, as Brisbane participant Rhys says, “build momentum and get these things up and running, keep them running. If we can do that, we can take Spinal Cord Injury away from where it’s been for so many years.”
To refer someone to Walk On, please email walkon@scia.org.au. To find out more or make a much-needed donation to support the program, visit our website www.scia.org.au.
Here’s to taking the next steps with Walk On.
Stay strong,
Peter
Peter Perry
Chief Executive Officer
Spinal Cord Injuries Australia
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Ps. Take a moment to enter our photo competition celebrating the national launch of Walk On during Spinal Cord Injuries Awareness Week! Simply upload a photo showing “What makes you happy” to our Flickr page for the chance to win a digital camera. Entries close Tuesday 24 November.
ENTER HERE: http://www.flickr.com/groups/walkon.